Location : Marseille, France
Beginning of the project : 2015
Leaders of the project : Prof Nicolas Lévy
Sector : Health / Research
Partners : APHM, Aix-Marseille University, INSERM, AFM-Téléthon, the SUD Region, etc…
DESCRIPTION OF THE PROJECT
GIPTIS, the future largest Euro-Mediterranean institute for the fight against genetic diseases, brings together all the main players concerned, namely medical teams, fundamental and applied research teams, start-ups, pharmaceutical companies, patients and carers association, to work closely with the sick in a place of excellence that is totally innovative.
Bringing together these skills is essential for meeting the challenges:
– Speeding up diagnoses
– Increasing research capabilities
Multiplying the number of available treatments
– Improving the care of patients and families
Our ambition: TO CARE BETTER AND FASTER, ON A LARGER SCALE.
LEADERS OF THE PROJECT
Prof. Nicolas Lévy is a geneticist, Head of the Department of Medical Genetics of the Timone Hospital, Director of the Medical Genetics Centre of Marseille and co-founder of Progelife. In 2003, he identified the cause and mechanism of Progeria disease.
EUR 22.7 million
Total project cost: EUR 77.7 million
Today, rare genetic diseases affect 3 million people in France and 50 million in the Mediterranean.
More than 95% of patients are without adequate treatment (less than 300 treatments – a major potential for research and innovation)
60% of patients are children.
Often unknown or poorly classified, these diseases are in the majority of cases serious, chronic and debilitating. They have long-term impacts on entire families.
GIPTIS aims to defend the need for a Euro-Mediterranean Institute to fight against genetic diseases, creating a North-South axis to meet the significant needs in the Mediterranean:
- Promoting the exchange of expertise and developing specialist centres, deploying diagnostic tools
- Facilitating patient access best practices in an area particularly affected by these diseases
The GIPTIS model can be replicated at the international level. To date, GIPTIS has received various signs of interest and from countries from the Middle East and North Africa region.
2016: Launch of the project and architectural designs studies
2019: APHM memorandum of understanding finalised
2020: Opening of the Maison GIPTIS, initial location of the Institute
2023: Opening of the Institute in Marseille